avatar

jimblair

Gold Finger

Posts: 676 Member Since: 03/02/2011

Lead

Jun 27 15 8:48 PM

Tags : :

Hey all. This may be an unusual type of thread for PRW, but I've ok'd it with Terry, and I hope everyone is understanding, and appreciates the nature and seriousness of this post, and it's intent.

 As many of you know, I own and operate a small residential studio, which specializes in vintage keyboards. I've been involved in the synth music scene for many years, and have developed a 
fascinating and inspiring circle of electronic musician friends and acquaintances from around the world.

Among the most treasured of these friends are a synth performance and composition duo called "SynthFreq". Located in Austin, Texas, twin sisters Danielle and Crystal write and 
perform incredible 80's style instrumental synth rock.They play live shows, release peformance videos from their studio on their Youtube channel, and upload videos showing how to program and repair vintage synths, samplers, drum machines, and sequencers. Great stuff, and excellent players.

So far so good. Unfortunately, there's another side to their lives, a side that is much less bright.

Both Danielle and Crystal suffer from a brutal number of physical challenges. Danielle has very limited vision. Some of her gear has braille incorporated in the faceplates. With other gear, she memorizes the sequence of menus in order to dig into the synth's parameters. She covers the edges of her gear with reflective tape so that her rig is visible. Due to her lack of peripheral vision, she tapes the synths to the stands because she bumps into them so often.

She also has severe hearing loss. Her hearing begins at 70db, and is most effective at around 115db. Her audible frequency range is from 250hz to 3k. Her hearing aids go up to a bone-rattling 132db. Her left ear is entirely deaf.

She also suffers from epilepsy, which results in constant tremors and ongoing seizures. The tremors are focused in her legs, toes, and tongue. So just eating and taking meds is a chore. Danielle takes medication with soda because the carbonation helps her get the meds down.

Due to a medication error in an epilepsy monitoring unit, Danielle has permanent and severe nerve damage in her leg, and must walk with a brace. This will not get better. Danielle also has a rare condition in her hands, which now is preventing her from playing cello and guitar.

Both Danielle and Crystal have wonderful service dogs. (Wizard and Sunny.)

As if all this isn't enough, the excellent instructional and entertainment videos that they create for the SynthFreq youtube channel tend to be ridiculed in the comments section. Idiots make fun of Danielle's speech, and comment on their appearance.

Here is a link to one of their many great videos...(PLEASE check this stuff out. There are a lot of videos, and they are really cool.)

[url=

The video link that I've included shows Danielle, Crystal, and their roommate Rachel performing an original composition. In April, Rachel had a seizure in their apartment, and died in Danielle's arms. In the past, Danielle and Crystal had saved Rachel from drowning in water, suffocating in dirt while the neighbors watched, and prevented her from being run over by cars while having a seizure in the road.

These two deal with constant challenges and tragedies that I can't even imagine. Yet they are kind and friendly people, and are among the most enthusiastic musicians that I've ever known. And their abilities are not just limited to the audio arts. Danielle's Sharpie synth art is astounding. Have a look on the SynthFreq facebook page. Absolutely amazing work. And remember, she has extremely compromised vision.

So, because of these challenges (and more), they are now in a position where they will have to move to a new home. They simply can't afford the rent in their current location. They are also having to sell gear to make ends meet. Personally, this situation is making me crazy, and simply feels profoundly unjust, and I want to help them (I already have a synth boxed up and ready to send to Texas. No charge, of course). At some point, these two musicians just need a break. So I'm wondering if there is anything that our world-wide PRW community can do to help Danielle and Crystal.

Suggestions? Is there anyone in Austin that can help Danielle, Crystal, and their canine companions out? 

(Sorry about the format issues. I composed this offline, and it's been a bit of a job getting it to look good on the forum.)
 

Nanaimo, BC Canada www.facebook.com/ApeIslandSound

Last Edited By: jimblair Jun 27 15 9:54 PM. Edited 3 times

Quote    Reply   
avatar

jimblair

Gold Finger

Posts: 676 Member Since:03/02/2011

#3 [url]

Jun 28 15 9:43 AM

Thanks Terry. As you know, this is a very difficult situation for a couple of really great people.

Spiritworks; I'll talk to Danielle and see if she can set up a Gofundme account. People are willing to help, but need a focal point to make a donation.

Nanaimo, BC Canada www.facebook.com/ApeIslandSound

Quote    Reply   
avatar

Emre

Tin Man

Posts: 48 Member Since:11/07/2015

#4 [url]

Jul 11 15 12:32 PM

Hi all! I´m Emre from Germany. Long time lurker - first time poster. And not a pro at all.

Oh my, this story really broke my heart. First of all I think their music is really awesome, and the two are fantastic musicians. So, just from a musical point of view, I think they need to be heard.

As to what can be done to help them, setting up a donation campaign is a very good idea - and should be done asap. I`d be more than happy to make a contribution.

Also, there are so many big shot names contributing to PRW, producing a "charity track" from their musical repertoire could be another idea, with the money raised from its sales to be donated to SynthFreq. With attributes like „Produced by X, guitar solo by Y,…“ floating around such a piece of music, chances are that some serious level of awareness could be raised, including the media buzz which is crucial for a donation campaign like this to be successful. These are just the first things to come to my mind, and I won´t be able to stop thinking about other ways to help for quite some time...

Quote    Reply   
avatar

zmix

Aqua Marine

Posts: 4,060 Member Since:20/01/2011

#6 [url]

Jul 12 15 8:24 AM

I am so saddened when I see people crushed out of an innate desire to realize their true human potential by economic circumstance.

Such a heartbreaking story..

Quote    Reply   
avatar

dr funk

Platinum Blonde

Posts: 1,636 Member Since:24/12/2011

#7 [url]

Jul 12 15 11:13 AM

Somehow I missed this thread first time around...

Wow, that is a heartbreaking story. Surely there must be one kind soul somewhere in Austin who is in a position to offer accommodation to Danielle, Crystal and their canine companions without trying to fleece them in the process?

Frank

Quote    Reply   
avatar

jimblair

Gold Finger

Posts: 676 Member Since:03/02/2011

#8 [url]

Jul 12 15 11:54 AM

Hey Frank. That's what I'm hoping. Someone has stepped up to help Danielle set up a donation page. Another person has paid to get her Juno 6 synth out of a pawn shop. I'm hoping that there are some Austin members who might have a lead on some accommodations. I really hate it when people have to sell the tools of their trade in order to keep a roof over their heads, or buy food, or medical treatment. It's a bad spiral. You sell your tools to live, but then you lose work because you no longer have the tools.

They do live shows and sessions too, so any work related leads would probably be appreciated.

Danielle has some very interesting medical related videos on her fb page. The latest is of a recent NMES treatment to try to get her leg working again. Of course she's trying to find out all the synth-related data from the treatment. CV, waveforms, ramp times, pulse width, etc. lol.

If everyone here is ok with this, I'll keep updating this thread as I get more info.

Nanaimo, BC Canada www.facebook.com/ApeIslandSound

Quote    Reply   
avatar

Emre

Tin Man

Posts: 48 Member Since:11/07/2015

#9 [url]

Jul 12 15 1:35 PM

jimblair wrote:
If everyone here is ok with this, I'll keep updating this thread as I get more info.

If they are ok with it, yes please. I´ve made some calls regarding this story. I´ll let you know what result my efforts will have.

Quote    Reply   
avatar

dr funk

Platinum Blonde

Posts: 1,636 Member Since:24/12/2011

#10 [url]

Jul 12 15 2:19 PM

I can only speak for myself, but yes, please update the thread if there's any more news, Jim.

Emre wrote:
If they are ok with it, yes please. I´ve made some calls regarding this story. I´ll let you know what result my efforts will have.


Nice one Emre - and welcome to PRW!

Frank

Last Edited By: dr funk Jul 12 15 2:26 PM. Edited 1 time.

Quote    Reply   
avatar

Emre

Tin Man

Posts: 48 Member Since:11/07/2015

#11 [url]

Jul 12 15 4:55 PM

dr funk wrote:
Nice one Emre - and welcome to PRW!

Frank

Thank you Frank! This feels like a great place to be around. I`m looking forward to whatever I might learn from the pros.

Quote    Reply   
avatar

Emre

Tin Man

Posts: 48 Member Since:11/07/2015

#14 [url]

Aug 5 15 7:55 AM

jimblair wrote:
Update: Danielle spent the last nine days in the hospital. Not a good situation. On the good side, she came home to find the delivery of a synth that we sent her! Little things can do much to brighten spirits.

That´s great news Jim - and what a generous move! What synth did you send her?

Quote    Reply   
avatar

jimblair

Gold Finger

Posts: 676 Member Since:03/02/2011

#15 [url]

Aug 5 15 11:06 AM

Emre wrote:

jimblair wrote:
Update: Danielle spent the last nine days in the hospital. Not a good situation. On the good side, she came home to find the delivery of a synth that we sent her! Little things can do much to brighten spirits.

That´s great news Jim - and what a generous move! What synth did you send her?

Hey Emre. They do a lot with older Roland gear, so we sent a mint little MT32. One of the D50's little siblings from around 1987. I've always liked them, and of course Danielle is immediately rocking it in ways I never thought of. lol. (I tried a few methods of embeding this link to her video, but with no success.)

https://video-sea1-1.xx.fbcdn.net/hvideo-xfa1/v/t42.1790-2/11799050_1010112425667743_753268284_n.mp4?efg=eyJybHIiOjQ4NywicmxhIjo1MTIsInZlbmNvZGVfdGFnIjoicmVzXzQyNl9jcmZfMjNfbWFpbl8zLjBfc2QifQ%3D%3D&rl=487&vabr=271&oh=3f2e4fc6d5967c3b461cb7e8fb356c94&oe=55C2580F


And thanks Terry, but no sainthood required. I'm just one of many people who are trying lend a hand. 




 

Nanaimo, BC Canada www.facebook.com/ApeIslandSound

Last Edited By: jimblair Aug 5 15 11:10 AM. Edited 2 times.

Quote    Reply   
avatar

Emre

Tin Man

Posts: 48 Member Since:11/07/2015

#16 [url]

Aug 5 15 1:16 PM

The MT32 is actually really a nice little unit, although often overlooked. I am sure Danielle will get the most out of it, I would´t even wonder if these gals had MIDI interfaces where mere mortals have organs...

Well done Jim!

Quote    Reply   
avatar

Jayjay

New Forum Friend

Posts: 1 Member Since:10/02/2017

#17 [url]

Feb 10 17 5:07 PM

Any News?

What's up with  Danielle and Crystal? Any Information seem to rip off around 1 year ago.... I am concerned.... Any news?Just stumbled on SynthFreq today and felt in love with sound, skill and passion. And of course their arsenal of hardware :-) 
Really hope they're doing well

Quote    Reply   
Add Reply

Quick Reply

bbcode help